Round 2 IVIG- Day One
We went into yesterday full of nerves. We pulled into the same parking spot as last month and headed upstairs to get checked in. All of our same nurses were on staff and Hunter picked the same infusion room. The nurse attempted to get his IV in, with little resistance from Hunter...and then his vein blew. Darn! She called the ER staff to see if one of them could get his IV in on the first time, since they start IV's multiple times per day. He was able to get it going on his other hand, after a hot pack and an attempt to get his veins more visible. Our nurses started the SoluMedrol (heavy dose of 125 mg) which ran for thirty minutes due to the dosage, and then it was time to start the IVIG. The nurses watched him closely, monitoring his blood pressure, and I requested he have a pulse ox just to make sure all his stats were good.
He went through the morning with no complications. Very sweet, talkative (kind of funny to see the rush the IVIG gives him), but did have a little trouble turning off the computer as it was time to go. Love those steroids!
Peyton and Paige had their own fun...Paige attended soccer camp and Peyton got to spend the morning with our friends- they took Paige to camp, brought Peyton to a super fun park, and then topped off the morning with a lunch trip to Chuck E Cheese! Peyton slept for 3 1/2 hours when we got home- he was wiped!
We let Hunter relax during the afternoon and since it was a beautiful day, we put the boys in the stroller and had Paige ride her bike to the lakes around us to feed the ducks and go fishing.
As far as the treatment went, day one was successful. At bedtime, however, we saw the effects of the steroids- we knew we would, so it wasn't a complete surprise, but still tiring all the same. He didn't fall asleep until almost 10 PM (after getting up and down several times), and then was up from 3:30 until about 6 AM. I had to wake him to leave for the hospital, so I know he is going to be one tired boy today. The whole week we did the steroid burst we had night wakings, but that was four times the dose each day. So I am hopeful we are past the night owl stage...for the sake of ALL of our sleep cycles. :)
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| After his IV, he got to pick two prizes from the cabinet since he was stuck twice. |
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| Picked the ONLY Cars related item in there!
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Peyton and Paige had their own fun...Paige attended soccer camp and Peyton got to spend the morning with our friends- they took Paige to camp, brought Peyton to a super fun park, and then topped off the morning with a lunch trip to Chuck E Cheese! Peyton slept for 3 1/2 hours when we got home- he was wiped!
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| Sweet friends threw a coin in the wishing well for Hunter to feel better :) |
As far as the treatment went, day one was successful. At bedtime, however, we saw the effects of the steroids- we knew we would, so it wasn't a complete surprise, but still tiring all the same. He didn't fall asleep until almost 10 PM (after getting up and down several times), and then was up from 3:30 until about 6 AM. I had to wake him to leave for the hospital, so I know he is going to be one tired boy today. The whole week we did the steroid burst we had night wakings, but that was four times the dose each day. So I am hopeful we are past the night owl stage...for the sake of ALL of our sleep cycles. :)
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