The Bucket
Since our steroid burst, I have been doing my best to contact everyone I possibly can about the treatment. I called a professor at Yale in charge of a research study on the effects of IVIG and PANDAS (Hunter didn't qualify for the study, as it has been over six months post initial illness). He gave me a few minutes of his time and answered a few questions. The main point I pulled from our conversation is that the university and the professionals involved would not put children at risk if they felt they would harm children in the process. His study was interesting, in that they would have a placebo group as well as a treated group, and determine the efficacy of the treatment. If the placebo group wanted, they would be able to complete the IVIG six weeks post study. He knew Dr. K and spoke of his methodology and his formula for the dosage, and reiterated that his study focused on children who had recently been affected, not those like Hunter, who had been insulted a few years prior.
I also have reached out to facebook PANDAS groups, chat groups, moms who have been through the IVIG process, moms who have children with PANDAS and have only used long-term antibiotics, and friends/colleagues who may have experience with children either with PANDAS or an ASD.
One graduate school friend had an impacting conversation with me. She works with young children on the spectrum, and her parents have blamed the vaccinations, illnesses, genetics, and other hypotheses. She explained it to me like this...
We all are born with a bucket. This bucket is designed by genetics. Throughout your life, every bucket is filled with outside contaminants, whether it be vaccinations, food dyes, preservatives, environmental toxins, and in Hunter's case, viruses. Different levels of these factors can make the bucket overflow, until finally....
it tips.
At a Juice Plus conference I attended Thursday night, the presenter (a physician) seemed to follow the same train of thought. He stated that environmental toxins, poor nutrition (or absorption in some of our immuno-deficient children), stress, and other factors suppress good genes and promote the bad genes. As a nation, we have been flipping the powerful switches, or tipping the bucket, for over sixty years. Nutrients from our food help modulate genomic functioning. Hunter (and the rest of the family) take Juice Plus every day to ensure he is getting the whole based nutrition he needs for optimal health.
Hunter's bucket has tipped. His bucket is full of auto-immune issues that have become too heavy to make it stand straight. His therapies, supplements, nutrition, and our support are helping that bucket to become upright once again.
I also have reached out to facebook PANDAS groups, chat groups, moms who have been through the IVIG process, moms who have children with PANDAS and have only used long-term antibiotics, and friends/colleagues who may have experience with children either with PANDAS or an ASD.
One graduate school friend had an impacting conversation with me. She works with young children on the spectrum, and her parents have blamed the vaccinations, illnesses, genetics, and other hypotheses. She explained it to me like this...
We all are born with a bucket. This bucket is designed by genetics. Throughout your life, every bucket is filled with outside contaminants, whether it be vaccinations, food dyes, preservatives, environmental toxins, and in Hunter's case, viruses. Different levels of these factors can make the bucket overflow, until finally....
it tips.
At a Juice Plus conference I attended Thursday night, the presenter (a physician) seemed to follow the same train of thought. He stated that environmental toxins, poor nutrition (or absorption in some of our immuno-deficient children), stress, and other factors suppress good genes and promote the bad genes. As a nation, we have been flipping the powerful switches, or tipping the bucket, for over sixty years. Nutrients from our food help modulate genomic functioning. Hunter (and the rest of the family) take Juice Plus every day to ensure he is getting the whole based nutrition he needs for optimal health.
Hunter's bucket has tipped. His bucket is full of auto-immune issues that have become too heavy to make it stand straight. His therapies, supplements, nutrition, and our support are helping that bucket to become upright once again.
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